Time to add something to this blog, and this time, it’s good news.  If you’ve been following what I’ve been writing – and yes, I know I haven’t been writing much in the past year thanks to Facebook – I’ve written a lot about the surgery I had in January of 2011 to remove a benign tumor known as an acoustic neuroma (AN).

Today I had an appointment to see Dr. Erika Woodson of Cleveland Clinic.  She’s the surgeon who removed the AN, which if she hadn’t, could have possibly caused problems with brain function, as it’s not attached to the brain but is right next to it. 

It’s the first time I’ve seen Dr. Woodson in over a year.  Standard procedure after an AN is removed surgically is to have an MRI done within a few weeks to make sure the entire AN is gone.  I did that, and there was nothing there.  Then, another MRI is done about a year later.

I had that second MRI done in May (it was actually my third MRI, the first one being the one that confirmed the presence of the AN).   The results came back a few days later, and in an email, Dr. Woodson said there was no recurrence.

Today, I saw her in person, so I could ask her questions, and she could see what progress I’ve made in the past year.

I’ve made progress, because an unfortunate side effect of the surgery in some cases is that nerves wrapped around the AN cannot be reconnected, which means a loss in some facial motor skills.   Some get beyond this with physical therapy.  I got past it with surgery by Cleveland Clinic’s Dr. Daniel Alam, who implanted a facial sling so that my facial muscles wouldn’t lose tone, and he connected my facial muscles to new nerve pathways.  Those nerves have to learn to communicate new information, and they are slowly doing it.

I still don’t have the smile I had before my surgery.  I can’t whistle.  I can eat just fine, though, and have no problem drinking (even with a straw).  Nevertheless, I’m improving.

Dr. Doug Hicks, who is in charge of speech therapy at Cleveland Clinic, worked with me a while, but he said I was doing just fine, so we ended our sessions months ago.

Now back to Dr. Woodson.  

She told me today that I’m doing so well, that I won’t need to see her for another four years, which will be five years after my original surgery.  That’s the best news someone who has had AN surgery can get!

Thanks, Dr. Woodson, for what you did on a cold winter day in 2011!   It was a little scary going through that surgery, but the outcome has been fantastic, as I came out of it with a slightly different face, but I’m healthy, and that’s the important part.

If you want to learn more about Acoustic Neuromas, go to the web site of the Acoustic Neuroma Association.  They’re based in the Atlanta area, but there are support groups all over the nation, including one in northeast Ohio.  I went to a support group meeting in Copley a few weeks back, and got a lot out of it.

It was great to meet people who were fellow AN patients.  People who are just like me.